FOR PARENTS & CARERS
NEW & EXPECTANT PARENTS
Congratulations!
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Receiving the news that your child has Down syndrome can take time to adjust to. Our parent volunteers understand more than anyone the questions and concerns that you may be experiencing. Whether you have received a pre-natal or post-natal diagnosis and however you are feeling, we are here to support you in any way we can and to point you in the direction of reliable, up to date information.
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We have a dedicated trustee, Roseanna Reed, available for new and expectant parents to contact for support. Roseanna is available for a chat on the phone or in person if you would like a friendly listening ear.
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You can contact Roseanna by emailing
HOSPITAL PACKS
We are proud to be to able offer packs of information (plus a few goodies) to new parents which are distributed by maternity units at Poole, Dorchester and Southampton.
These packs make new parents aware that Downright Perfect is here to support them as well as providing easy to read information from experts and pointing new parents in the direction of national organisations to turn to for further advice.
If you are a new parent in the Dorset area and did not receive a pack before leaving hospital, please get in touch.
PARENT/ CARER WORKSHOPS
We run parent information workshops on key topics which can be difficult for parents to navigate.
Downright Perfect also offers parent / carer only social workshops which are opportunities for parents to meet up in a relaxed environment with an opportunity to share experiences.
Visit our Upcoming Events page to find out when our next Workshops are taking place.
GRANDPARENTS
We understand that receiving the news that a baby has Down syndrome can take time to adjust to for the whole family. Grandparents are likely to be wanting to support the parents whilst also dealing with their own concerns about their grandchild and the impact they may think the diagnosis may have on their child.
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Our trustee, Gill Clark is Granny to Jojo and is happy to talk to other grandparents if you would like the opportunity to talk to someone who has been in your shoes.
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You can contact Gill directly by emailing mrsgillclark@gmail.com.
PEER SUPPORT
Downright Perfect is made up of the most amazing group of families. We celebrate milestones together and are there to support each other when a member is facing challenges. Whenever someone has a question, there will always be someone in the group happy to help who has faced the same situation.
As well as having opportunities to build relationships and talk at our events and parent workshops, we also run a members only Facebook group where parents/ carers can reach out for support.
HEALTHCARE LIAISON
We have built strong relationships with local healthcare services, including maternity and fetal medicine teams. These services are always looking for feedback on when care goes well and also when things could have been dealt with differently.
We have a dedicated Healthcare Liaison, Louise Tumilty-Savage, appointed to assist members to provide feedback to local services.​
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If you would like help contacting your local healthcare provider to provide feedback, you can contact Louise at healthcareliaison@downrightperfect.org.